地平线系列：我的神奇双胞胎

幽默尖刻、面部严重毁容的播音员亚当·皮尔森(Adam Pearson)展示了一部关于基因的私人电影。他和他的双胞胎兄弟尼尔基因相同，都患有相同的遗传疾病——神经纤维瘤病1号(Nf1)——但他们却完全不同。亚当的脸上长满了赘生物，而尼尔却没有。尼尔有短期失忆，而亚当却很锋利。

The acerbically witty and severely facially disfigured broadcaster Adam Pearson presents a personal film about genetics. He and his twin brother Neil are genetically identical and both share the same genetic disease, Neurofibromatosis 1 (Nf1) - yet they are completely different. Adam's face is covered with growths, whereas Neil has none. Neil has short-term memory loss, whereas Adam is razor sharp.
How can the same genetic disease affect identical twins so differently?
Adam is on the cusp of a successful film and television career, but the disease has left tumours on his face that are growing out of control and he could lose his sight. For years, everyone thought Adam's brother Neil had escaped symptoms, but today his life is governed by epilepsy and a mysterious memory loss that suddenly came on during his teens.
Determined to save their future, Adam tries to find out why the disease affects the twins so differently and see if there is anything he can do to stop it from tearing their lives apart.

讲的是神经纤维瘤，一对同卵双胞胎有着完全不同的表现，其中的一个，Adam，寻找答案和治疗办法的旅程，有点儿意思。现代医学能做到的很多，无能为力的也仍旧很多。看的时候想到了那个电影：带头套的《弗兰克 / Frank》。
看了有点难过 世界还是很不公平的
看得很压抑，怪病不是100%可以解释的，科学还没发展到所有疑难杂症都能根治的程度
很叙事了。
雪梨去世新闻出来前看的，非常感慨。
一型神经纤维瘤导致面部畸形，整个面部全是肿瘤，做个32次手术还是不能纠正畸形，太可怕了。同款双胞胎基因变异导致不同的疾病！神经纤维瘤太可怕了，造成人体软组织畸形，影响人的正常社交、工作和生活。
如果有医学无所不能的那一天就好了
如果是你，你想拥有正常的外貌，还是正常的大脑？
无法解释的过程中人生却不会停下
现实版奇迹男孩？双胞胎兄弟又可爱又乐观，看完觉得我的一些焦虑忧郁都不算什么。而我们真的幸运很多，应该更积极的面对生活，珍惜生命，珍惜健康。
@ office
健康乃人生之本。惜福、感恩！
主人公很有勇气，国内看到类似患者在街上乞讨。
如何活的有尊严
补。
不了了之
人类在医学面前仍旧那么渺小，基因突变使哥哥的整个脸变成了一个巨大的神经纤维瘤，弟弟的那个突变的基因仍在体内却没有显现出来。弟弟的记忆缺陷有可能和基因突变无关而是因为小时候一些事情导致了脑内发炎？越南橙剂那段看得泪目了。
“我还想努力下去再多活30年”看到这真的泪目了
上帝不是公平的。
现实比剧情还魔幻